Having a clear guide to navigate the autism diagnostic process can help parents recognize early...
Read MoreAging is a universal process, but the experience can be vastly different for individuals on the autism spectrum. As we better understand autism spectrum disorder (ASD), addressing and providing support for the unique challenges and support needs that individuals with ASD face—particularly concerning health care, housing and social interactions in later life—becomes all the more essential.
The autism spectrum across generations
ASD doesn't disappear with age; the health care field is witnessing a growing population of aging individuals on the autism spectrum, and their needs are becoming increasingly important to consider.
“Understanding the spectrum of autism and its manifestations is crucial when providing appropriate support,” said Kathryn McMullin, L.C.S.W., R.P.T., A.S.D.C.S., therapist at Inspira Autism Diagnostic Center Woodbury. ASD can present different challenges in older adults related to social cognition, difficulty with executive functioning skills, concentration, and memory. Understanding these cognitive challenges is imperative for developing appropriate support systems.
Health care challenges
Individuals on the spectrum may face difficulties in effectively communicating their health concerns and needs as they age, which can result in misdiagnoses, inadequate treatment and an increased risk of medical conditions going unnoticed.
“Tailored approaches to communication (individuals may become distracted by questions asked by the medical provider and not feel they have enough time to communicate any other concerns), sensory sensitivities (bright lights, crowded waiting rooms, presenting insurance card and identification and completing paperwork) and understanding the specific health risks they face is important in providing adequate care,” said Megan Zold, L.C.S.W., A.S.D.C.S., therapist at Inspira Autism Diagnostic Center Woodbury.
Housing solutions
Many older adults with ASD live with their families, but this may become problematic as caregivers age.
Creating housing options that cater to the unique sensory and social needs of aging individuals is vital. These spaces should offer a sense of familiarity and support while helping people maintaining their independence.
Sometimes, group homes and specialized communities can provide the necessary support, but availability and funding are often significant hurdles to overcome.
Social interactions and isolation
Social interactions can be challenging for individuals on the spectrum, which may intensify with age, when opportunities for socialization often decrease. Loneliness and isolation become significant concerns.
“Building social programs that accommodate the specific needs of older adults with ASD is essential. This can involve structured social activities, peer support groups and online communities,” Brianna Lewis, L.C.S.W., A.S.D.C.S., B.C.C.S., therapist at Inspira Autism Diagnostic Center Woodbury said.
Fostering a sense of belonging and community is crucial to preventing social isolation and maintaining a good quality of life.
The importance of early planning
It's never too early to start planning for the future. Families and caregivers of individuals on the autism spectrum should begin discussing long-term care and support options well before they are needed.
“Early planning helps ensure a smoother transition into later life. It allows for careful consideration of housing, health care and social support tailored to their unique needs,” said McMullin.
Acknowledging and addressing the challenges and support needs of those on the spectrum with tailored approaches in health care, housing and social interactions is crucial. By working to create a more inclusive and understanding environment, our communities can help individuals with autism age with a better quality of life.
